Abteilung Gynäkologische Endokrinologie und Reproduktionsmedizin, Bern. Michael von Wolff 1

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1 Michael von Wolff 1

2 Fertility preservation networks Dies ist der Titel der Präsentation for both sexes Michael von Wolff University Women`s Hospital Division of Gynecological Endocrinology and Reproductive Medicine

3 I (M.v.W.) have nothing to declare Michael von Wolff 3

4 This is Constantin He keeps saying: «You cannot climb the ladder of success (or a mountain) with your hands in your pockets» and «No pain no gain» Michael von Wolff 4

5 Top of Europe, Mont Blanc, 4810m

6 Top of Europe Top of North America Top of South America Top of..? Michael von Wolff 6

7 Agenda What kind of oncofertility networks do already exist? Why creating a network? FertiPROTEkT experiences Conclusion Michael von Wolff 7

8 Agenda What kind of oncofertility networks do already exist? Why creating a network? FertiPROTEKT experiences Conclusion Michael von Wolff 8

9 Different kind of networks Local networks National networks International networks Michael von Wolff 9

10 Different kinds of existing networks «Global»? network Large national network Small national network Michael von Wolff 10

11 National networks Small networks: centalized Few specialised national medical centers: Denmark Large networks: decentralized Many specialised medical centers with a central coordinating body: Germany Michael von Wolff 11

12 Agenda What kind of oncofertility networks do already exist? Why creating a network? FertiPROTEKT experiences Conclusion Michael von Wolff 12

13 A large country can produce large scaled studies for scientific or national purposes.. Large scales studies prepared by FertiPROTEKT Michael von Wolff 13

14 and most important Only a well functioning national network will allow to offer the best fertility preservation techniques and an individualized treatment to patients in all areas of a country. Michael von Wolff 14

15 Agenda What kind of oncofertility networks do already exist? Why creating a network? FertiPROTEKT experiences Conclusion Michael von Wolff 15

16 FertiProtekt the registered counsellings of women Michael von Wolff 16

17 The performed procedures (FertiPROTEKT) n von Wolff et al., RBMonline , 2015 Michael von Wolff 17

18 Get started! Create of coalition of the willing (President Bush) Do it under the umbrella of a national society Allow those who will perform the fertility preservation procedures to get the lead: the reproductive physicians Organize the first meeting under the roof of an IVF society together with many pharamceutical companies and invite all national centers and oncologists as well as some good speakers. Michael von Wolff 18

19 Create centralized cryobanks if possible Special tissue transportation boxes: Tissue can be transported for 24 hours in transportation medium (FertiPROTEKT) Liebenthron et al., RBM online, in press Michael von Wolff 19

20 Create a good website the heart of a network with addresses of centers Information for patients Information for physicians Michael von Wolff 20

21 Install a manageble documentation system and registry! Michael von Wolff 21

22 Cooperate! Removal of the tissue Storage in Bonn, the centralized cryobank of the network Transplantation of the tissue Delivery Michael von Wolff 22

23 Create an identity it must be an honour and economically beneficial to be a member! Recognizable Marketing for the members Well known Scientifically active Michael von Wolff 23

24 Be supportive! 200 pages book for both oncologists and reproductive physicians Free of charge print version Free of charge downloadable on the FertiPROTEKT website Michael von Wolff 24

25 >50%? >30%? Schüring.von Wolff, Arch Gynecol Obstet, in press Michael von Wolff 25

26 Organise annual meetings which are fun and support the concept of national Agenda integration! Hamburg Münster Düsseldo rf Bonn Jena Dresden Heidelberg Erlangen Tübingen München Insbruck Wien Michael von Wolff 26

27 Conclusion The success of Oncofertility networks is based on simplicity, integrity, dedication, logistics and on the decision that the network is exclusively designed to help patients. Michael von Wolff 27